We believe in autonomy, dignity, and the right to self-determination for aging Americans. Person-centered care (and person-centered care planning) empowers individuals by protecting and enhancing their right to make decisions about where and how they want to live and what care they receive. As states, plans and providers in various settings work to integrate person centered care planning and delivery into their programs and practices, we’re working to identify and push for policy changes that promote and preserve true autonomy for consumers.
Justice in Aging is working to develop a right to person-centered care that includes rules for how to involve seniors in planning their own care. We are surveying state, plan, and provider best practices and innovations, highlighting the great work being done in this area, and spreading information on successful implementation from state to state. We use our national scope and policy focus as we survey the laws, regulations, and contracts that control state, plan and provider actions, and offer guidance for states and advocates to help defend and strengthen the right to person-centered care.
In 2013, the Department of Labor issued a new home care rule for the long-term care programs that serve the elderly and people with disabilities, and it is scheduled to go into effect in October 2015. To ensure that states implement the rule in a way that helps consumers and the important workers who provide services to them, advocates can take a number of action steps, outlined in the below two documents that were created in partnership with several disability rights advocates.