We believe in autonomy, dignity, and the right to self-determination for aging Americans. Person-centered care (and person-centered care planning) empowers individuals by protecting and enhancing their right to make decisions about where and how they want to live and what care they receive. As states, plans and providers in various settings work to integrate person centered care planning and delivery into their programs and practices, we’re working to identify and push for policy changes that promote and preserve true autonomy for consumers.

Justice in Aging is working to develop a right to person-centered care that includes rules for how to involve seniors in planning their own care. We are surveying state, plan, and provider best practices and innovations, highlighting the great work being done in this area, and spreading information on successful implementation from state to state. We use our national scope and policy focus as we survey the laws, regulations, and contracts that control state, plan and provider actions, and offer guidance for states and advocates to help defend and strengthen the right to person-centered care.

In 2013, the Department of Labor issued a new home care rule for the long-term care programs that serve the elderly and people with disabilities, and it is scheduled to go into effect in October 2015. To ensure that states implement the rule in a way that helps consumers and the important workers who provide services to them, advocates can take a number of action steps, outlined in the below two documents that were created in partnership with several disability rights advocates.

Home Care Rule Advocacy Fact Sheet: How to Prevent Service Cuts and Protect Consumer-Directed Programs
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Action Steps for Consumers and Advocates Regarding the DOL Home Care Rule: How to Prevent Service Cuts and Protect Consumer-Directed Programs
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Other Person-Centered Care Resources for Advocates:

A Closer Look at Revised Nursing Facility Regulations–Assessments, Care Planning, and Discharge Planning

Voluntary Means Voluntary: Coordinating Medicaid HCBS with Family Assistance
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Issue Brief: ADA at 25: Aging Advocates Celebrate Partnership and Progress
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Issue Brief: A Right to Person-Centered Care
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Policy Issue Brief: Can Reality Match Rhetoric? Person-Centered Service Planning in Managed Long-Term Services and Supports
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